ScleroCare

A community for people living with scleroderma.

Talk with people who understand, read guides written in plain language, and keep your medical history ready for every appointment.

Join for Free

Supported by the Scleroderma Society of Ontario

Ask the people who live it.

Boards for Raynaud's, new diagnoses, treatments, and everyday life. Reply to a thread or start your own, and get a note when someone answers.

Visit the Forums

Walk into appointments prepared.

Answer a short set of questions once. Your symptoms, medications, and history stay in one private place, ready when your care team asks.

Start Your Résumé

Why ScleroCare Exists

ScleroCare began as a student project. With support from the Scleroderma Society of Ontario, it grew into a free platform for patients and the people who care for them.

Community
People with scleroderma, locally and globally, sharing experience and encouragement.
Clear information
Knowledge about scleroderma without the jargon, so decisions are easier to make.
Control
Tools that help you take an active part in your own care.
Belonging
A space for everyone affected, so no one goes through it alone.

Our Team

Dr. Sarah McLean

Principal Investigator

Dr. Sarah McLean is a teaching scholar and Associate Professor in the Department of Anatomy & Cell Biology at the Schulich School of Medicine and Dentistry at Western University. During her undergraduate degree at the University of Waterloo, her mother was diagnosed with scleroderma which encouraged her to pursue her PhD in Physiology. She teaches students who are interested in careers in healthcare and science. One of her courses focuses on Design Thinking in Medical Sciences, which is where the idea for ScleroCare, an education resource for those living with scleroderma, was born. Her research interests include active learning, experiential learning, and community-engaged learning. Dr. McLean is the recipient of numerous teaching awards, and empowers her students to make positive change in their local communities and the world.

Amel Sassi

Project Coordinator/Manager

As a current biomedical engineering master's student, Amel is a tech enthusiast driven by a passion to create meaningful change. She has always been particularly interested in using technology to enhance healthcare. During her time as a fourth-year medical sciences student at Western University, ScleroCare was an idea brought to life in one of Dr. McLean's courses. Now, with the assistance of the Scleroderma Society of Ontario, she has turned that idea into a reality. The collaborative effort, fueled by both academic exploration and real-world partnerships has allowed her to dive deeper into the many ways that technology can be used for the betterment of healthcare while also making strides towards positive and impactful changes.

Nouran Al-Banaa

Content Developer

Manikya Gunasekar

Content Developer

Mehvish Masood

Content Developer

Terence Yeung

Content Developer

Ashton Forrest

Consultant

Melanie Stone

Consultant

Questions About ScleroCare

Is ScleroCare free?
Yes. There is nothing to pay.
Who can join?
People living with scleroderma and the people who care for them.
Is my health information private?
Yes. Only you can see your medical résumé, and you choose when to print or share it. The forums are for members only and stay out of search engines.

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